Jump for Joy!!

Today we saw Dr. Flanagan and got several x-rays (left ankle too since it's been hurting...it's normal.) The hip is doing well enough that Joy can go down to once a week for physical therapy, and was cleared to run and jump! (Although she said jumping is still the worst thing for Joy's hip, do it as tolerated.)Then we hung out at the hospital, visited the rehab unit, had lunch in the newly remodeled cafeteria, and got to make an amazing gingerbread house in the ZONE!!! I think we were there 5 hours! The hospital is decorated for the holidays, and is quite lovely!

Sleeping brace/pillow

When we heard Joy would have to sleep in her brace for 6 months, I immediately asked for one of these. (The metal/velcro walking brace would have been very hard to sleep in!) Only one and a half more months to go before she's hit the 6 month mark!! Whew! I know she'll be happy to say goodbye to this ritual!
http://www.youtube.com/watch?v=EjPTtMAakQ0&feature=youtu.be

Give thanks

Grandpa Tom, his girlfriend Glad and I had Thanksgiving lunch with Joy today at school. She presented me with this lovely card she'd made. Since it mentioned the fixator and her "hip condition" I thought I'd share it here on the Perthes Blog. Such a sweet girl!!!

Perthes follow-up

Today Joy had two appointments. First was in the clinic to see the rehab doctor and show her how well Joy is doing! Then quickly off to orthopedics (carried Joy piggy-back to get there on time, then we waited an hour!!) We saw Dr. Schmitz today since Dr. Flanagan is on maternity leave with her new son! There seems to be a lot of growth on the x-ray, but the head shape is not as round as we'd hoped, more cylindrical. Goes back and forth in the socket well, but rotation is limited. He said Joy's hip will never be normal, but should get her into her 60's before a replacement is necessary! He also said she would never be a professional gymnast. (Not that she was going to be, but she was taking gymnastics classes when she was diagnosed with Perthes.) We'll have to get her on a swim team instead! She's not released to full activity yet (still no running/jumping), but activity as tolerated. We go back in December. Schmitz wouldn't completely rule out further surgery, but I think things are looking pretty good! If not for the external fixator, he said her femoral head would be square!

Last pin care!!

Now that it's been a couple of months since the external fixator was removed, I'm wishing I had taken more videos of Joy when she had it on. Oh well. Here's a video of the last time we had to do pin care before the fixator came off. We had it down to a science by then, Joy was even able to do the top pins herself.
http://www.youtube.com/watch?v=vfAl4eiyq4U

Sensations TheraFun

Our physical therapist told us about this place, it's right around the corner from them. Took Grandpa Lee with us today as we visited for the first time. She tried everything she could (no jumping on trampolines...) and we stayed about 2 hours. (For 17.00 we had to get our money's worth!) Her favorites were the bikes and the zipline. I liked the quiet room with all the cool light effects. Great PT for Joy! We'll be back!

Aqua Therapy!

Joy is now going every other Friday to aqua therapy!!!! She loves to swim! She got to wear a wet-suit for the first time, I really want to get her one!